Archive | July 2016

My Star Trek Funny

For those of my generation who do not and cannot comprehend why Facebook exists; I am trying to make friends outside of Facebook while applying the same principles. Therefore, every day I walk down the street and tell passersby what I have eaten, how I feel at the moment, what I have done the night before, what I will do later, and with whom.
I give them pictures of my family, my dog, and of me gardening, taking things apart in the garage, watering the lawn, standing in front of landmarks, driving around town, having lunch, and doing what anybody and everybody does every day.
I also listen to their conversations, give them the “thumbs up” and tell them I like them.
And it works just like Facebook.
I already have four people following me:
Two police officers, a private investigator, and a psychiatrist.

“Captain, this obsession over Facebook is quite illogical.”mr-spock Nimoy

1960’s Spock

Spock_Zachary_Quinto

Young Mr. Spock

“Spock. I could not agree with you more!”

Pine Chris

The more handsome Captain Kirk

Know your Rights – My Story

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Last December, I flew back with my husband and daughter for Christmas to see our family in California. Everything went fine on the day we arrived. It was December 23rd. So near to Christmas, I had prepared myself for challenges and delays that day. However, except for the TV not working in our motel room everything worked out fine. Even that problem worked out to our benefit because we were upgraded to bigger room for no extra cost! Kudos to Super 8!

Before I go any further, let me explain some of the major challenges I have flying anywhere! This is why I have taken to the friendly skies only five times in my 51 years! I need assistance to board and deplane the aircraft. You all know how incredibly narrow the aisle is on the plane. I cannot afford first class, so I have to plan  every detail of the trip well in advance. I can’t book a seat with a site such as Priceline either because I am required to make arrangements through my chosen airline. On a 737, aisle 6 is just behind first class; these seats have a bit of extra leg room, and I don’t have to be in that aisle chair too long. I also have the worry that that my $22,000 power chair is being treated with care because that chair has become a part of me, for it is my independence. Without it, I am stuck in bed! I have seem how the luggage is treated, so that is a major concern.

On the return trip, things begin to go wrong. We had a layover in Seattle before we caught our much shorter flight home, but our connecting flight was delayed. OK, I had a sense of foreboding, but I said a prayer and tried to put it out of my mind. We were also informed that we had been moved from aisle 6 to 13. I should have followed my instinct and insisted on my original seat. Not wishing to make a scene, I did not say much, in spite of my growing sense of unease. Getting into my seat was a good deal more difficult this time. I had to fight off an anxiety attack as my pants kept catching on the arms of the seats. However, I just kept thinking that I would be home soon.

We landed about an hour late, so it was 11, not 10 PM. Deplaning was a complete nightmare! They had a skeleton crew left to assist me, and they had no idea how to work together. I kept telling them that I was not seated on the chair well. My right pant leg was hanging up on each seat as went by at a snail’s pace. As they tried, unsuccessfully, to adjust me in the chair, they were talking to me as though I was a 5-year-old, without my mommy. Their cheer leading did nothing to keep my pants up, my underwear from showing or my frazzled nerves in check. It took over an hour to get me off the plane. I didn’t quite fall, my socks slid off my feet as they dragged on the tarmac. I was glad that my husband had the blanket ready for me. I needed to regain some degree of modesty, and I needed its warmth because it was literally freezing outside.

I will give them credit, my chair was there and intact, for the most part. I should have advocated for myself!  But I wanted to tell all of you that each airline are required to assist any person who requires it.

The Air Carrier Access Act prohibits discrimination on the basis of disability in air travel and requires air carriers to accommodate the needs of passengers with disabilities. In 1990 The Department of Transportation issued a rule defining the rights of passengers and the obligations of air carriers under this law. The following is a summary of the main points of the DOT rule (Title 14 CFR, Part 382). For more detailed information, here is the site:

http://www.disabilitytravel.com/airlines/air_carrier_act.htm

 

 

The Argonault

The very name of this chair sounds very space age; we are getting closer and closer to Star Trek and Jetsonian technology daily. This new  chair for is called the Argonault. It is only in the prototype stage. However, I can tell you that sitting in a chair usually makes makes a person much shorter than the average adult. It would be fantastic to have a chair that could raise up to a freezer or a high shelf. From the prototype animation, it also looks like you can roll onto it from the bed; this makes it much easier for the person with a disability  and/or the caregiver A Hoyer lift may not be necessary!  Arguably,  the most jaw dropping feature is the base that acts as its own ramp! You have to see it to believe it! I don’t have a photo to show all of you, but there are links  for you to look at below:  http://www.argonault.com/ and https://www.youtube.com/watch?v=ik286spRM1w

With people living longer, the cost of the assistive technology just has to come down. It is a quality 0f life issue. Study after study shows that people, if given a choice, people overwelmingly feel that a higher quality of life means more than longevity of life!

 

Simple but Profound Blessing of Love

“Do all the good you can. By all the means you can. In all the ways you can. In all the places you can. At all the times you can. To all the people you can. As long as ever you can.” John Wesley – the co-founder  of the Methodist Church.Daddy's baby girl

We get so caught up with the business of life, the mundane aspects of it that I think people forget that we are only here for a short time. We are supposed to be good stewards and tenants while we are here on this earth. We are supposed to take care of each other and our land that we borrow while we are here, until we go home to our beautiful eternal mansion. I have always loved music because it really is the language that almost everybody relates to and understands.

What the World Needs Now is Love Sweet Love, by Jackie DeShannon, is one of my favorite songs. It is so true and holds up beautifully today:

 

“What the world needs now is love, sweet love
It’s the only thing that there’s just too little of
What the world needs now is love, sweet love
No, not just for some but for everyone.”

 

How amazing it would be if we all loved one another, not hated! How glorious it would be if we exhorted each other, not put down. How miraculous it would be if we were good enough just being who we are. It would truly be heaven on earth! I wish that it could be as simple  as a daddy’s love for his baby girl and a daughter’s love for her Pops! I miss you Dad; you have the best laugh in the world!

Anastasia’s Amazing Speech

Kudos to Carol Costello who was the CNN reporter to highlight Anastasia’s speech. It is not difficult for a politician like Bernie Sanders or a Donald Trump to give a speech in front huge crowds as well as a TV audience. They are used to it! Yes, I realize that she is a inspirational speaker, but I bet she has never been in a situation like this! I am somewhat tongue tied talking to my instructors, let alone on such a huge stage! She, like all of us just want to be heard and valued as people first. The people first attitude means that instead of saying,” Hello, in case you are wondering, I have CP, Cerebral Palsy. Instead, I say now, “I  am Kathy and I am a person with a physical challenge called CP/ Cerebral Palsy.” In other words CP is just 1 aspect of my life, not the major one.

Here is the link to her speech: http://www.cnn.com/2016/07/25/politics/anastasia-somoza-democratic-national-convention-speech/

Dove

Anastasia

I am not trying to convince anyone to vote a particular way, but anyone watching CNN had the distinct pleasure to watch a beautiful young woman with Cerebral Palsy deliver a powerful speech! We, as disabled people, are all too often, not heard! Our potential goes untapped because it is easier to hear a person without a disability! Here is a link to learn more about this inspirational woman:

Anastasia

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